Our Story
​
Logan was delayed in most areas; we knew the crawling wasn’t going to work that well and walking would take a little more time. Logan said a few words at 6 months old, however, as he received more vaccine's he also lost more abilities. Logans speech developed slowly and never moved past 3-word sentences (mostly nonverbal), he lost fine motor skills and some gross motor skills, comprehension. Certainly, Logan was more affected by the vaccines because of his diagnosis with the missing parts of his brain. Logan was sick most of the time. He would catch every cold/flu that was going around, recurring ear infections which the doctor would prescribe antibiotics for every time. Logan developed a rash on his chin which we thought was from the constant drooling however, I later learned that he was filled with parasites, and candida/thrush from the overuse of antibiotics. This may cause many different skin issues.
​
I had him in speech therapy and physical therapy at age 3 although, he was bouncing off the walls (overload of candida and parasites) and was unable to attend to anything longer than 10 mins (10 mins was a miracle). I began talking to other people regarding our situation and they would direct me to other avenues such as; Naturopathic and Homeopathic physicians, Medical Intuitive, Cranial Sacral Therapy/ Somatic release, Brain gym, Brushing the body, joint manipulation, diet/nutrition, herbs, and supplements. I changed Logan’s diet first, taking him off all sugar, dairy, wheat, and everything he tested positive for (food allergens) and began putting him on supplements and herbs to detox and rebalance his system, I also started Cranial Sacral Therapy. We started this process at 5 years old. Logan began to improve drastically over time. His father taught him how to ride a bike, a quad, skateboard, and roller skate (Logans eyesight was limited so these things were a miracle). Logan loved to swim with a life vest on. Life seemed to go well (Logan was still hyper, easily distracted, limited speech) until puberty hit.
​
Logan was born with hip dysplasia (missing balls on the femurs), heart murmur, and at 18 months was diagnosed with Open lip bilateral Schzincephaly minus septum pellucidum (Schzincephaly developed in the first trimester). Logan wore a Pavlik harness for the first 6 months of his life. We were informed by the specialist at birth that his hips were not an issue and would not need to be addressed until he was older. The nurse, however, had a different perspective warning us that Logan would not be walking if we didn’t get him in a harness right away.
Puberty started at 14 years of age. The seizures began with Absent (the terminology seems to change frequently so I will refer to the original names) and would shift into a partial. Logan would stop breathing and turn pale. We tried to get into the Neurologist, however, it was a 3 month wait. We lived in a small town, so we only had access to 3 Neurologists. I called the medical intuitive Teresa Brandise and asked her to scan him to see what she was getting. I then correlated the information Teresa was receiving with the Cranial Sacral therapist/ Naturopathic Doctor Jim Siad and found amino acids and added supplements which seemed to stop the seizures until Logan turned 16 and had his first Grand-mal seizure after working on the computer. We went to the ER and his Neurologist prescribed generic Keppra. We put time limits on the computer and began the medication. The first few days Logan felt euphoric then he became irritated, moody, combative
and aggressive. I informed the Neurologist that this was completely out of character and Logan had never displayed any of these behaviors until the onset of the medication. The Neurologists response was,” there are NO side effects to this medication”. We were so scared we didn’t know what to do and seeing the grand-mal seizure was beyond frightening. As time went on with the medication Logan began to have an increase of seizure activity with increasing behaviors such as picking his fingers, wearing the same outfit every day, less friendly and more aggressive. I called the Neurologists office 3 times per week to inform him of the new behaviors taking place. Finally, he said that we could try the brand name and that might work better because the ingredients are always the same consistency. There was a slight improvement as the range of seizures decreased a bit. This was short lived, the grand-mals and partials became an everyday affair ranging from 4-6 per day and sometimes more. Logan was put on Depakote which increased behaviors 10-fold plus increased the seizures. We dealt with rages of anger and violence daily which included, kicking, punching, biting, swinging keys and other objects at us (sometimes up to 6 hours straight) many times while driving. Logan had kicked the front windshield out while we were driving one time. He put dents all over our vehicles, kicked and punched holes in the walls, kicked the glass out of our wood stove, he tried to break the windows and damage our furniture. We were living in a war zone. We reached out for help from the system to no avail. The police would come, and he would calm down for a short time then go right back into insanity. We didn’t have family, so it was just Logans father and myself trying to manage. This lasted about 4 years. We were also in and out of the hospital several times per month. We had tried 7 different medications to no avail. He always had intense reactions to the meds. Logan was then diagnosed with Lennox Gastaut which is a drug resistant epilepsy.
​
We found Cannabis oil and that has been our saving grace. We started Logan on cannabis while decreasing the medications. We were getting 2 weeks seizure free, and the behaviors reduced as we lowered the pharmaceutical drugs. Once we were down to just 1 keppra pill (250 ml) per day and CBD plus THC life became manageable. We get 6-10 weeks seizure free with 7-14 days of seizures and another 2 weeks of recovery. We still deal with some behaviors; we deal with some hitting occassionaly after an episode of seizures, mood swings seem to be somewhat regular however, there has been 90% improvement in the violence. Logan hasn’t pulled his toenails out since stopping the meds and the recovery process is quicker and more efficient.
​
We have found that keeping Logans diet clean and healthy, doing Cranial Sacral Therapy weekly plus other alternative therapies, utilizing high grade supplements/ herbs as well as Cannabis and building his immune system up has been the best path for us. We still deal with epilepsy as it is drug resistant and that’s okay because we have improved Logans life by taking him off the pharmaceutical drugs and taking the path less traveled. Most people with Logans diagnosis have a shorter life span (mid-teens). Logan is now 26 years old. This has been a journey of heartbreak, heart ache, exhaustion, chaos, despair, fear, sorrow, deep depression, although; it has also been filled with love, resilience, courage, bravery, joy, new insights and new ways of being, surrendering, opening to the greater truths of life and emotional freedom. At times we have been stretched beyond perceived capabilities and brought to the very depths of confusion and despair left wondering if we would ever return to “our normal”. This Journey has shown me that indeed God is always there guiding and supporting us. Life is happening for us and not to us. We are not the same people we were at the beginning of this journey. My heart is in awe of the way things need to happen in order to break us open and shift us to the core. I now understand the meaning of unconditional love, compassion, trust and surrender. This is a powerful and sacred journey, every one of you is held with love, awe and blessings in my heart.
I want to thank the people that made this journey possible, we could not have done this without you. Each and every person listed below has a special place in our hearts.
Dr. Milaney
The homeopathic doctor that started us on natural medicine
​
Teresa Brandise
She is the medical intuitive that continually helped us to stay on track
​
Lana Lee LeSoleau
Our first cranial sacral and somatic release therapist and long time family friend
​
Dr. Jim Siad
Naturopathic Doctor/Chiropractor/Cranial Therapist and fantastic advocate for families
Katherine Woodward Thomas
Katherine is a licensed marriage and family therapist and a New York best selling Author of Conscious Uncoupling and Calling in the One.
Ryan Clark
A huge thank you for helping me put this website together, because without you I would not been able to share Logan's story with the world