My Mama Didn't Tell Me There Would Be Days Like This.

Logan deals with Lennox Gastaut. The seizures are intense and varied. Logan will have 6 - 10 weeks seizure free( Cannabis oil keeps the productivity low), then deal with 7 - 15 days of random seizures ( mostly grandmal and cluster with a few 20 min seizures). A rough patch is 10 -12 grandmals in a 7 hour period (at night when he tries to sleep) and can't sit still during the times he is awake( you guessed it, he doesn't sleep). This recently happened and lasted on and off for 2 weeks. The first week was pretty regular at 10 seizures per day then dwindled down to random 6-8

This was unbearable and felt like we had hit rock bottom. Logan was trying to leave throughout the day because his brain was so scrambled he couldn't stop moving. Trying to get him to eat and drink was like swimming upstream against rapids. There was no relief from the pain and suffering for about 3 weeks. Just when you think you can't take anymore, there comes another wave that knocks you down hader. Believe me, a person can endure the unthinkable and still come out breathing and walking. The amount of pain and suffering I have felt watching my son go through this and going through it supporting him has completely changed me. I never realized that a person was capable of being completely shattered to the core to be put back together by the love of the Divine. You either choose bitterness or you choose Love. I chose Love. I know that this journey has opened me to life and to the freedom of knowing that I can Love deeper than any ocean, I can endure the impossible and I can forgive the unthinkable. The compassion I feel for the suffering of the human consciousness runs through every cell of me being. I see all of your suffering and I hold each and every one of you in my heart. No matter what we face, when we surrender we transform. We allow the answered prayers to heal us and move us beyond our experiences. We become the Earth Angels we were destined to be. We hold each other in the moments of breathlessness, we pray for one another in the face of adversity and we walk together in Love. So much Love and so many Blessings to each of you.

Wendy